these are the days
the lent family blog

Critical Need

July 26th, 2008 by admin


The patients at Children’s Hospital Boston are currently in critical need of platelet donations. If you can, please contact the Blood Donor Center to make an appointment as soon as possible.

Call 617-355-6677.

more information at: Donating Blood & Platelets

I know many of our Platelet Heroes have been called recently. Thank you all for your continued support…for all the kids we know, and all the kids we don’t know…

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Time is flying!

July 16th, 2008 by admin

The days are flying by, each filled with fun! Emma turned 9 TODAY! Happy birthday Emma! See how she has grown over the last 9 years…

We’ll backtrack to June 25…Ethan had another INCREDIBLE check-up @ the Jimmy Fund Clinic. He continues to amaze his docs. He also saw his neurologist who concluded he has no residual effects from his stroke. We have quite a line-up of appointments on Wednesday, August 27: lung function tests, echo cardiogram, clinic appointment for check-up, blood work and first round of his immunizations. Tack on dental and ophthalmologist that we’ll see outside of the hospital, and that will conclude his one year post transplant follow-ups.

An quick overview of July:


celebrated Independence Day at the Cape


sleepovers, friends, cousins


Ethan got to see his 1st Red Sox game with a GRAND SLAM @ PMC Night @ Fenway


I was teary throughout the game, so happy to be there, with Ethan next to us…

and we spent a couple great days in NH with friends, today we celebrate Emma’s 9th birthday…and there’s still more fun to come!

Yancy continues to train for the PMC, riding 102 miles last Sunday…his longest ride yet! Thank you for your generous donations…Yancy has exceeded his minimum fundraising level, actually doubled it! Much more PMC news to come as August 2 draws closer.

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Kids say the darndest things…

June 27th, 2008 by Yancy

A week or two ago Emma had two friends over for a sleep over. The subject of cracking knuckles came up between the girls. After a minute or so Ethan interrupted with this gem… “once I cracked my neck knuckle”.

Priceless.

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PMC 2008 Training Update

June 26th, 2008 by admin

http://www.yancylent.com/2008/06/26/training-update/

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Dreaming…

June 8th, 2008 by admin

As I sit here and recount the days events, I wonder, “Am I dreaming?”

Ethan attended soccer for the first time last Sunday. Today he gets to go again…and he’s so looking forward to it. His goal last game made his week, and instilled a love for soccer from the get go. Today is supposed to be HOT…high 90’s. We know we’ll take it slow, keep hydrated, make the most of it.

We head to soccer at 12:00pm. It’s hot, but Ethan’s ready. They practice for a half hour, and then play a game for a half hour. He’s SO into it. While it’s hard for him to hear on the field, he stays tuned in to where the ball is, where he should be, and what’s going on. He remembers the secret I told him from last week, “Ethan, the secret is that you can’t do anything in that clump of kids around the ball…but if you wait outside the clump of kids, the ball will come out, and then it’s all yours!” Ethan manages three goals in the game today. He’s not the fastest kid out there. Speed has never been his thing. But, at the age of 6, he already “gets” the game, and waits for his chance with the ball. So, there’s Ethan today, in the 95 degree heat, scoring goals on the field! GO ETHAN!

more soccer photos @ www.lentfamily.org

We then proceed on to the Pan Mass Challenge Kids bike ride at Bradley Palmer State Park in Ipswich. Emma, Ethan and Eliot registered to ride today, and raised money for The Jimmy Fund. It was a wonderful event, and the day was BEAUTIFUL. Yes, slightly warmer than ideal weather, but BEAUTIFUL. The beauty though was enhanced by the fact that Ethan was riding PMC Kids. We’ve HOPED and DREAMED we’d be here, together, riding…and our DREAM came true. The three hours are filled with fun…face painting, crafts, Ethan being photographed with the other five SURVIVORS…children…SUPERHEROES…all sporting pins that say “I’M LIVING PROOF”, and then Yancy and I ride with Em, Ethan and Eliot, as they head out the trail for the 3.2 mile ride. They all ride as if they have endless energy. And once again, Yancy and I feel as though we’re dreaming. The event is touching, to say the least.

We hang out with another Rowley family, with three children. Their dad has rode the PMC for four years now and will ride again in August for his 5th time, and they have done PMC Kids many years now too. Yancy chats with him, getting some PMC tips…gearing up for the big ride in August.

We head home…El’s sleeping by the time we pull in the driveway. Yancy heads out for a long 50 mile bike ride. El sleeps cozily in bed, at only 5:00 pm. Em watches a movie upstairs. Ethan watches a movie downstairs. And, as Mommy writes, she concludes she is dreaming, and wants the dream to be ever-lasting.

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Update, June 1

June 1st, 2008 by admin

Beautiful days…the last couple weeks have been filled with beautiful days. We returned from Florida last Sunday, one week ago. While in the hospital Ethan often asked if we could go to Disney…he’s never been, he wanted to go, so that’s what we did. We had 6 fun-filled days at Disney parks, and Sea World. They all had a great time, and Ethan held up particularly well, going all day in the heat and sun. Parks, dinners, swimming…lots of fun! Ethan loved it, and of course is already asking when we can go back! Our family, friends, and community’s support throughout last year made this trip possible. It wouldn’t have been easy for us to do a trip like that without the support you gave us. Thank you, thank you…

And this past week at home has been gorgeous weather. Yancy and I are still so very thankful to be at home right now. Given that we were in the hospital throughout this gorgeous time of year last year makes it extra special, and we’re not taking it for granted. Ethan wakes early and plays all day. We keep busy at home and around town during the days, catching up with people we haven’t seen in awhile, gardening, playing outside, etc. I would say that fatigue shows faster than usual for him, but he doesn’t let it slow him down. He continues to keep up with the fast pace he sets, even if the grumps set in.

In the next couple weeks, soccer and baseball conclude, Em has a dance and piano recital, they ride in the kids version of the Pan Mass Challenge. Lots to look forward to. We look forward to many sunny beach days ahead, quiet summer mornings, late summer nights, spending more time with friends and family.

Ethan’s due back at the Jimmy Fund Clinic on Wednesday, June 25. We continue to have such great hope, and cherish each day at home, together…

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dirt matters…

May 15th, 2008 by admin

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“thanks mom” marrow donor drive

May 13th, 2008 by admin

Join the Donor Registry
Life. It’s in you.
You could be the one a patient needs.

Join the marrow donor Registry for free online during their Thanks Mom campaign, May 5 to May 19, 2008. Thanks to generous partners and contributors, costs are covered until they reach their goal of adding 46,000 new donors to the Registry.

Join online now. It’s easy and it’s free for the first 10,000 people who join online.

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The Hole in the Wall Gang Camp

May 13th, 2008 by admin

The Hole in the Wall Gang Camp

We have been looking forward to this weekend for a long time. It was finally here. The kids were psyched…we were going to “camp”. We’ve never been to “camp”. And we’ve definitely never been to Family Cancer Weekend at camp. Yancy and I had no idea what to expect.

Friday evening we were greeted with smiles in the rain…assigned to our rooms in a lovely lodge. We have two rooms, each with two bunk beds, sharing a bathroom. The kids love it. We immediately meet Paul, our “Family Pal”, who will be with us for the entire weekend. He gives us a tour of the entire camp Friday evening, in the drizzle. We see so much…the camp resembles a small western town…you feel as though you’re on a movie set. We see a tree house, art studio, wood shop, gym, theatre & costume rooms, boat house, fishing dock, infirmary (which we promise to each other we will not go to)…and we finish the tour with a beautiful dining hall, where we gather for a casual dinner, game of bingo (Ethan’s favorite!…especially when everyone wins!), and group welcoming activities. We end up after dinner in the theatre, singing songs. By 8:30 pm we’re headed back to the lodge for a good night sleep.

There’s about 20 families here this weekend, from MA, CT, NY and NJ mostly. I would say that only two or three of the children appear as though they are on “active” treatment for cancer. It appears as though this is any family weekend at any camp. However, what we’re about to find out though, it that this camp is different…every staff member here, every volunteer here finds it to be a privlege…they feel lucky to be at this camp, with these kids. And every parent can feel that, for the entire weekend.

Our “Family Pal”, Paul, has volunteered at this camp with his wife for years. They come for five or six weekends throughout the year, and two weeks in the summer. We didn’t know what to think at first, when he said he’d be with us all weekend…from before breakfast, to night time. He was amazing though. First off, how wonderful to finally be back to one-on-one with the kids…three kids, three adults…perfect. And to top it off, Em, Ethan and El love him. He’s part of the family from the get go. He gives piggy-back rides upon request, he wrestles, he accommodates our every need and want. He doesn’t say no. That’s what this camp is about…accommodating…never saying no. Give these kids what they want, because they deserve it.

Breakfast isn’t until 8:30 a.m., so Paul meets us at 7:30 a.m.. Ethan wants to head to the costume room, so that’s what we do. We try on hundreds of costumes for the first hour of our day. The kids are in heaven! Then on to breakfast. Then on to fishing. Em and Eliot catch fish…big bass fish…and pickerel. People are catching large bass out of this pond left and right. Then we’re off to the 36 foot high climbing tower, something Emma really wanted to do. And while the tower is supposed to be for 8 year olds and up this weekend, we ask if Ethan can do it (he was really looking forward to it). Of course, they accommodate him. If he wants to do it, he gets to do it. They harness up, helmet up. Emma climbs…Ethan climbs. Ethan then zip-lines down…36 feet in the air, about 300-400 feet long. He’s down, and he wants to move on to the next activity…painting with Kevin (he’s hospital buddy he painted with) in the art studio. Paul, our Family Pal, takes Ethan to paint. Meanwhile, Em’s still at the top of the tower socializing with others up there. Eliot’s crying, wanting to climb the tower. A camp-worker asks why he’s crying, finds out he wants to climb, and of course…accommodates Eliot. Our fearful Eliot wants to climb, because Ethan and Emma did. Eliot climbs up…okay not really. Eliot is essentially hoisted up the entire way. Once at the top, Eliot tells them he wants to zip-line down. Here comes Eliot (he’s still in his costume from this morning)…overcoming his deepest fears, just to be like his brother. And then Emma zips down. And if that’s not enough, Daddy decides to climb and zip down too. Off to lunch. After lunch we have only a 30 minute “rest” break, before afternoon activities start. Ethan’s insect/spider bite on his toe that we discovered at 3 a.m. seem to be swelling and very bothersome. Mommy and Ethan use the 30 minute “rest” to head to the infirmary. Thankfully, we’re headed there only for some anti-itch ointment.

Afternoon…we do archery, more fishing, boating around the pond, wood shop, art studio, basketball in the gym. The big event this evening is the “Talent Show” in the theatre. We’ve placed our name on the list of participants, just in case the kids want to go on stage. They say they do. Emma practices magic tricks that Paul taught her throughout the day. Ethan says he’s going to tell jokes. Emma and Ethan head to the costume room. They pick out what they want to wear while on stage. The show begins. I’ve never been moved by a talent show before. Even before my kids got up there, I have tears welling up in my eyes. Every child that walks up on that stage…you know they have a story…you know they have gone through something big…whether they’re a sibling, or a hero…they’re amazing. And every child that walks up on that stage feels completely safe, completely comfortable, completely loved…because that’s what this camp is all about. And that’s why Emma and Ethan did something they normally wouldn’t do…went up on stage, without a second thought about it. Emma did her magic tricks, accompanied by Paul. Ethan told his jokes, loud, perfectly, flawlessly, accompanied by Daddy. And then…Eliot’s lip starts to quiver, he holds back his tears. He wants to go up and tell a joke too. Within minutes, they fit Eliot into the “line-up”, Ethan lends Eliot his “costume”, and he’s up there with Daddy telling his joke, “What stays hot in the fridge?…HOT SAUCE”. You couldn’t tell that Eliot wanted to go up; he didn’t look like he enjoyed it. But, he wanted to do it, because Em and Ethan did. Today, two days after his performance, he says to me, “Mommy, are you happy I went on stage and told my joke?” Did he do it to make us proud?

Anyhow, at the end of the evening, we’re touched…love is in the air. This place makes everyone feel amazingly special. I’ve never seen a show like this. I would pay money to see this show again. The dances, the singing, the jokes, the piano playing, the magic shows…and the magic. The whole show was magic…and…we’re WIPED OUT! We head back to the lodge for story time in front of the fire. All the little kids (about 8 and under) gather in the pajamas, all drinking their Paul Newman lemonade juice boxes. Ethan, Emma and Eliot, Daddy and Mommy are cuddled on one of the many couches around the fire. Ethan falls asleep within 10 minutes, Emma’s close behind. Then we head to bed. A long, wonderful day behind us.

Sunday morning, we head to breakfast to meet Paul. Each table in the dining room is decorated for Mother’s Day. Each “family pal” takes their family’s kids away, and they come back with gifts for Mom…flowers, coffee mugs, Crabtree & Evelyn goodies. Kevin, Ethan’s painting buddy, leads everyone in such inspirational songs, filled with such love. It’s very touching…my eyes once again filling with tears. I look around the room, taking it all in. Realizing all the stories that everyone in this room has. Thinking about how far we’ve come since last Mother’s Day, which we didn’t recognize at all…it wasn’t about Mother’s at that time…it was about surviving.

We spend the rest of the day in the woodshop doing projects. We grab a lunch-to-go, and the kids wrestle with Paul on the grass outside. We hug him goodbye, and thank him for an amazing weekend. The weekend surpassed our expectations. Paul surpassed our expectations. The camp surpassed our expectations.

Pics can be found @ www.lentfamily.org

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One Year…

May 8th, 2008 by admin

This week was filled with two monumental milestones. On Tuesday, May 6, Ethan became a free man, having all restrictions that he’s lived by for the past eight months lifted. What does this mean to a six year old boy? It means he gets to have a friend over to play INSIDE…it means that he gets to lick the bowl after we make cupcakes (he couldn’t before…raw eggs)…it means he can finally go to the grocery store with mom. Little things…it’s all about the little things in life. Ethan begins this day by coming into our bedroom first thing in the morning. He whispers, “Mom, I’m off restrictions.” We end the day, with having a few of Ethan’s closest friends over, with their families. We hang out. The kids run around outside and inside for hours on end. They play, and play, and play. Ethan’s playing…We believe in miracles…We believe in SuperHeroes…

Before the year 2007, May 7 never meant anything to us. It’s now a date that will never pass without reflection. May 7 makes us eternally grateful. May 7 makes us quiet. May 7 makes us elated. May 7 reminds us how important prayer, faith and hope are. May 7, 2007…the day Ethan was diagnosed. Our lives changed forever on this day. We can recount every second of that day…and the next few weeks and months are now a blur? Our minds have difficulty processing this past year. The longest year? The fastest year?

We find comfort in talking about the year. It helps. We retell good times, and bad times…the best and worst of the year…happy moments…and downright heart-wrenching moments. It helps…

We head to The Hole in the Wall Gang Camp, in CT, this weekend. It’s Family Cancer Weekend. Next weekend we head to Disney World, in FL. We’re celebrating. We’re thrilled. We’re blessed. We’re so hopeful.

And while we celebrate our good fortune, we continue to pray for the children and families that are suffering. Why aren’t they as fortunate as we are? Aside from living with the unknown, this is the hardest part…Seeing other children not get “cured”. It’s not fair. Why us, and not them too? We pray for Timmy. We pray for Mary. We pray for Antonio. We pray for Christina. We pray for Jonathan’s family. We pray for Gabe’s family. We pray for Jessie’s family.

Yancy and I thank you from the bottom of our hearts, for everything that you have done for us. Your gave us so much support…you got us to where we are today. We can never repay you for what you’ve done for us. We are eternally grateful.

As always, stay tuned. Continue to be a part of our life…Ethan’s life. We’ll update you on the adventures to come…So many!

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