Days flying by

The past week has flown by…last Friday to Monday, Yancy and I switched on and off a bit more than usual, covering home and the hospital. I was able to spend Monday with Emma, her last day of school, celebrating after her half-day, with ice cream and a get-together at the beach. Em, Eliot and I had a great day! I returned to the hospital Monday evening, only to get sick with a migraine on Tuesday, and quickly returned home until Wednesday. Grandma Mary stayed with Ethan while Mommy recovered at home.

Friday Ethan enjoyed playing for three hours with best friend Austin. Time flied as they played with Moon Sand in the playroom, scurried all over the playground doing monkey bars (again!), slides, climbing up and down, etc., enjoyed a popsicle, popcorn and video games. Ethan had a great time, and was so full of pep, and life…Austin brings out the best in him. Thank you guys for coming in!

On Friday evening, Daddy, Em and Eliot, after a visit at the hospital, headed out to Scotia, NY, to Yancy’s mom’s, to celebrate his niece Kateri’s graduation from high school. Congratulations Kateri! They will all enjoy celebrating together!

Mommy and Ethan will spend the weekend at the hospital, Grandma will be coming in again today to hang out. Cousins Joe and Cassia will be in this afternoon to visit. I might make a quick visit home to catch up on some stuff, and just escape for a couple hours. It’s amazing how wonderful fresh air feels after being inside for days.

Ethan continues to do great overall. This week he’s had a bit of nauseusness in the late afternoon/early evening, not tolerating his afternoon “feeds” really well. Poor guy got sick in the Resource Room on Thursday, while watching a movie with everyone in there. Yancy and I were meeting with the Transplant doc at the time. Mornings he spends in bed, playing Playstation, Webkinz, watching shows, writing, while he receives his meds. By 10 a.m., he’s usually “unhooked” (disconnected from his IV pole) and off to the playroom. He stays “unhooked” until about 2 pm, and then receives more meds, afternoon feed, platelets/red blood as needed, etc. His meds right now are antibiotics for a fever and to clear up some redness around his central line site, an anti-fungal med that’s a routine med after chemo, any nausea meds we choose to use for that day depending on how he feels. He’s ususally not asleep for the night until 9pm, and he’s up between 6-7am these days.

I also realize that my transplant blog was a bit lengthy and way too detailed…I copied most of it from the hospital website, and modified it slightly. I’ll write again soon, briefly summarizing what Ethan will be going through (under 100 words, I promise)…

Have a great weekend…enjoy the fresh air…thank you for all your thoughts, prayers and support…and continuously checking in here.