Ethan and I just returned from a check-up @ clinic today. His doctor thinks he looks phenomenal…AND his blood labs are stellar! His doctor marvels at how clear and wonderful his chest sounds. His pneumonia he had in June 2007 was so severe, she said, “Every doctor that saw the scan of his lungs, and saw Ethan in the condition he was in, would have told you his lungs would be severely compromised permanently.” And now, she says by listening his chest she would never know he had pneumonia or lung damage.
Ethan will return in August, for his 3 year post-transplant check-up!
it’s time…we’re ready for a dog! This past weekend we visited Berkshire Hills, where they breed Australian Labradoodles, and confirmed our decision to get a puppy! What fun we had…check out the dogs, click here for pics.
The puppies won’t be born until the December time frame, and won’t be coming home to us until January’ish’. Good timing though, as it’s something exciting to look forward to down the road.
Once again, a much overdue update. The children started back to school yesterday, and we now look back on our summer days.
July was spent visiting family and friends, spending quality, relaxing time on the Cape with my parents, enjoying days that had no schedule to them. Yancy and I tried to fit as much training for the PMC in as we could, but that proved to be as difficult as we had imagined.
August was kicked off with the PMC two day ride from Sturbridge to Provincetown. Team Superhero was amped up, and we knew our mission. Yancy, Kate and I, along with the other Team Superhero riders, had an incredible weekend. The 110 miles the first day were actually intensely fun. We were definitely wiped at the end of the day, but felt great the next morning as we started day two. Our family met us at a Brewster waterstop on Sunday. It was great seeing everyone, all of whom have been so supportive of our ride. Our kids enjoyed their special weekend with Grandma and Papa. It was hard work, but we all felt like we had trained enough, something I know I had doubted going into the ride. There is so much to more to tell, so many inspiring moments, emotions to explain…that’ll come with time, another entry at some point.
While Yancy went back to work the next day, the kids and I stayed on the Cape with my parents. We enjoyed lazy days, hanging at the house. While I wasn’t physically sore, I was extremely fatigued…the energy I expended during the weekend, the emotions, and the absence of the adrenaline I had been running on for the past days…it all caught up to me. The kids enjoyed great quality times with Papa…projects around the yard, returning empties to the redemption center, breakfast and lunch treats, wiffle ball and catch, Papa’s evening stories by the fire.
Wednesday, Ethan and I went into Boston for his 2 year post transplant checkups. We drove back to the Cape feeling great, knowing that we had a 7 year old boy in great health! His labs looked phenomenal, his heart very healthy, and lungs super-strong! Emma and Eliot spent the day with Grandma and Papa, enjoying some time at Nauset in the waves, collecting the best rocks in the world.
We departed the following Friday, sad to leave, but knowing we’d regroup in only a few days in CT for the 3rd Annual Ethan Lent Golf Tournament, organized by Kate and Nick.
Yancy, the kids and I attended the golf tournament. All of my siblings were there, and Dad drove in with his friend from NY. It was to be a great day. The tournament was a success, with over $4000 raised for the Jimmy Fund/Dana Farber Cancer Institute. Ethan played all 18 holes of golf with Yancy and Uncle Nate. Unfortunately, Dad wasn’t feeling well that morning, so instead of going to the tournament, he went to the local ER. I wasn’t playing golf, so Eliot and I went to spend time with him at the hospital.
Papa wasn’t feeling well, to say the least. While he went in for back pain, the pain was so bad he was vomiting, and the doctors chalked his sickness up to food poisoning. I left for an hour to take Eliot back to the golf course. I return to see Dad still very sick, very tired. By 4 pm things take a turn for the worse, and I call my siblings to come as soon as they can. By 7pm, our Dad had passed away. As I write these words, my eyes fill, and my stomach turns. It is still so surreal.
Dad’s four children were at his side…what a blessing.
Those next 7 hours are some of the worst of my life…comprehending, knowing our Mom wasn’t there with him, getting our Mom to him, telling our Mom…losing our Dad…
We manage to wade through the hours of the next days…an autopsy reveals Dad had an thoracic dissected ascending and descending aortic aneurysm. We relive every moment, including the what-ifs, whose fault is was, what to do, who to blame, how come…in the end, several days later, we conclude there was probably nothing anybody could have done…
We all spend the next week and Mom and Dad’s house in NY, we grieve together, talk about Dad, continue to talk to Dad…we save services for a later date, after this makes sense. We don’t rush, we don’t make rash decisions…we try to comfort Mom…we all take comfort in knowing we’re together.
We’ll continue doing this for some time…time…time is what will heal. So overused, but so true. We take comfort in our blessings, as we have learned over the past two years. More hurt, more sorrow, but more love in our hearts.
We’ve outgrown our blog at http://www.lentfamily.org/blog/. It is still there if you’d like to read it. We look forward to keep this this one up to date with all the wonderful things our family is doing.
We’re really excited to announce that Team SuperHero has acquired another rider! Yancy has decided to ride PMC 2009…Both he and I are really excited. Thanks to all of you, I have surpassed my minimum required fundraising goal of $4200. Everyone’s support has been amazingly generous, and has blown us away!….THANK YOU! We’ve come so far in the last couple years, raising another $4000 for Yancy to ride is a challenge we’re feeling up to.
If you haven’t donated yet, and would like to make a very WORTH-WHILE tax-deductible charitable contribution, we welcome you to click on the PMC logo to the right.
Thank you for your support! We’ll start posting our training progress soon!
A brief entry…but a fabulous one… Ethan went into clinic last Wednesday, April 29. We’re thrilled to report he is one HEALTHY BOY! He hadn’t been in for a regular check-up since October, 6 months ago. Thursday will mark 2 years since the day he was diagnosed. We are blessed to be where we are today, and continue to have such great hope! Thanks for staying tuned in, and sharing this journey with us.
I was asked to spread the word about a bone marrow donor drive in Boston, on April 19th and 20th. The 20th is Patriot’s Day…Boston Marathon. If you’re in Boston, can spare an hour, and want to try and save a life, check this out: Bone Marrow Donor Drive for Eve .
Ahoy Maties! We had the honor to attend the Make-A-Wish Gala last night in Boston. The kids were invited to participate in the event. They went up on stage around 9:30, in front of ~400 guests, donned in their pirate regalia. Ethan’s story was shared, and then he picked the raffle winner of the diamond earrings, and they pulled them out of Ethan’s treasure chest. The event was amazing, and very successful, raising over $100,000 for the Make-A-Wish Foundation of Massachusetts. See them on stage in the video below:
I took Emma out for Ice Cream tonight to White Farms. It’s a celebratory visit to dairy land due to her outstanding report card. On they way I asked one quesiton that put everything into prospective. “So Emma, what are you happy with Summer on the way.” The first answer. The ‘hot’ weather, the second answer, getting her list of books to read over the Summer. She is truly amazing. We had a really great conversation on the way home. One that built on that. We talked about running and how it’s said that “My sport is your sports punishment”. Running is the foundation for building on all sports. Much like how reading is the building block for all her endeavors at school. I think the premise worked. Hopefully it will let her know that what she does for fun with transcend into all facets of her school work. The bonus plan, maybe she also got the hit about running and will become a runner like her Dad .
Emma, congratulations on your fantastic report card. I am very proud of you.
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